Pros
Interesting to learn about diseases and research around their cures.
Cons
Serious concerns about this organization's integrity and direction. Funding is heavily pharmaceutical-industry-dependent, raising obvious questions about whose interests are actually being served when lobbying for public research dollars. Executive compensation appears disproportionate relative to other nonprofits and what staff actually has to work with — outdated equipment being a notable example of misplaced priorities.
Operationally, the culture seems to run on pressure rather than purpose, producing surveys and materials that feel more like busy work than meaningful contributions to the field. The awards program and its accompanying gala come across as self-congratulatory rather than genuinely recognition-driven.
The bigger concern is sustainability. The organization appears to be built around a single long-tenured leader, and there's little evidence of a vision or structure that will outlast their overdue departure.