T1D Exchange Reviews

Organization harvests data from people with T1D via their registry. While the patient users of this registry may think that their data is going to diabetes research for a cure, in fact it's just going to pharma. Pharma uses this information with the sole goal of improving their bottom line. The CEO of the org makes close to half a mil annually leading a small (under $10 million in annual revenue) nonprofit, which seems awfully high for a person who had no experience leading a charity when he began. I wonder about this place. They get nearly all of their money from pharma selling data and research support. It's lucrative and would seem more appropriate for a for-profit as pharma is their client, not the patient with T1D.

Can be difficult working with multiple clinics in the collaborative.